Monday morning

‘Get up, get my clothes out.

What time is it?’ Calls from Seb.

Violin practice, ‘eggs or porridge?’, ‘Can I ride my bike?’

Lunches made, kids off to school.

M25, trains to Euston, distant sounds.

That used to be me; drive to Heathrow, valet parking;

Train to meet customers, packed agenda, I am contributing.

Toilet, shower, getting dressed,

Can I do the shirt button? Yes, that’s good,

45 minutes all in all.

A blessing, I have time to read, to write,

The watcher, the listener and yes, still the doer.

Different things, cards (a little hard to shuffle),

Listen to my son read stories.

I peeled and chopped the apples last night;

A sense of achievement.

The weekend – somehow everything crashed;

So much has happened, quickly too.

Golf for Sebastian, Valentina biking and a birthday,

Normal life carries on; that’s good!

Back to the morning, mind wandered,

Facebook posts show another world

(Maybe best not to look?).

In the end, we are on our own,

‘It’s up to you, Andrew.’

That’s true. Positive about the day ahead.

Great to be alive and see the faces, hear the laughter.

Andrew Knowlman

I am a 50-year old father of two children, married to Jane. I live in Hertfordshire, UK. I was diagnosed with Amyotrophic Lateral Sclerosis in April 2015.

2 thoughts to “Monday morning”

  1. Andrew you are an amazing human being with a sense of defiance and spirit rarely seen in today’s consumer world. I take inspiration from your strength and heart from your outlook. I have fought in war zones and seen many things in my 42 years but I don’t think I have seen a man with more courage than you show every day.

  2. Hi Andrew,
    We’re very sorry to see you’re not in the best of health
    It’ll be great to catch up soon.
    Tash George and Ela
    Cookie and Lola (guinea pigs)
    Leyla (the dog)
    0776 427 2287

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