Voice input blog

This is the first blog I am putting together with voice input. The index finger and thumb on my right hand are still okay for writing on my iPhone, but I thought I would try it. The main challenge will be to keep the blog concise. If it starts to be full of waffle, please let me know.

This weekend Jane went away for the first time in a long time. I keep writing about the help that we get from our community, and I make no apologies for doing so. I think it is a great example of what is possible in our world.

On Friday evening, Valentina and Sebastian went to different friends after school and had dinner there. One of our friends brought us a fantastic curry. On Saturday morning a new friend of ours took Sebastian to the driving range and I am pleased to say to the Rose & Crown. Valentina went to the same friend’s house as on Friday and spent the day there. My dad, 87 years young, travelled down from York to be with us for the weekend. On Sunday morning another friend of ours came over at 9 o’clock to help my dad get the show on the road. The tasks included giving me a shower, getting me dressed, preparing the lunch for Sebastian and making sure he had all his golf equipment. A mum from the golf club took Sebastian there, spent two hours with him before his round and brought him home. He played thirteen holes with one of the members during the afternoon. This young man came to the club specially to play with him. Everyone made sure he kept fed and watered during the day. Meanwhile, one of our friends took Valentina ice skating . I was able to attend the local church, and there found a very welcoming and friendly group of people. I think that if we open ourselves up to the community which is there, then amazing things can happen. 

I am pleased to say that I have now identified a carer to help me. She came for the first time on Friday and gave me a shower and got me dressed. It was great to see her professional approach. Just in case you were wondering, it’s absolutely fine to be washed and dressed by somebody you don’t really know.

How should people react when there is a serious illness in the family? Many people have told me how our children should be reacting. My opinion is that they will react the way they react. They will show the feelings they have. There is no right or wrong way. The reactions will also change over time; that is quite normal I think. We see great people around, sometimes friends, sometimes teachers in school, who the children speak with and who provide an outlet for them. They show an incredible level of compassion and understanding. This is what is needed in our situation. Again it is another example of the fantastic community which we live in.

Andrew Knowlman

I am a 50-year old father of two children, married to Jane. I live in Hertfordshire, UK. I was diagnosed with Amyotrophic Lateral Sclerosis in April 2015.

One thought to “Voice input blog”

  1. Good to hear from you and to know that you are all experiencing help and love from the community; it was probably always there but you are accessing it now. Love to you all! It was lovely to be in your home for four days in November. I loved being with your children; it felt natural and flowing.

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