Where is the hope in a terminal illness? Can I be the outlier? Like Stevie H. Live for the day; yes, but sometimes the day isn’t great. So many visitors, privacy gone, family life changed forever. Realisation that you can’t rely on the services; thinking too limited and creativity comes from friends. Public services cash-constrained and people risk-averse.
Trip to Dalston, a Turkish area. Mixed emotions; Jane and I met twenty years ago in Istanbul. Future not the same as thought, for us.
Straw-based Guinness, much easier. Miracle elixir?
A trip to Sebastian’s room; I miss sitting on their beds. There were plans for trips when the kids had moved on; I always loved maps.
Our cherished welfare state, pride of our country, is unable to properly support a family with MND; what a shame.