Awareness

The MND patient, sufferer
Living with MND sounds better?
Positive spin culture!
Last thing I want to live with.
Awareness Month, Posters everywhere
Imagine if you only had your eyes
Likes, tweets, thank fuck it’s not me!
I am grateful for the campaign and do my bit!

I’m in the Class of 2015
Your few years – what’s the plan?
Foundation, Blog, Travel, Stay home,
Campaigner, charity advertising, Family?
‘So others don’t have to suffer’
Relentless, new diagnoses, deaths.
My GP, a campaigner, an acquaintance
Three in a few months.
‘Fought bravely, made a difference’.
Yes, but GONE!

Maybe many years?
It does happen. Not ready yet.
Years of parenting to be done.
Books to sell
Foreign language learning –
Make a difference.
That’s my thing.

Miss out? Damn right!
Events, doing, participation,
Wish I was doing that.
I never will.
Other things now.

How do people keep going
after the decimation caused by
MND, with zero chance of
recovery?
I’m not done – there’s a family
That needs me.
The dead thought that too,
I assume. Mind game.
Good mine is rock solid,
Life focused.

Put yourself out, extra mile.
We rely on you, you go the
Extra hundreds of miles.
Big ambitions – why not?
More to come! Thanks!!

Lyke Wake Walk last weekend,
Friends walking (40 miles) for our family
It was difficult, blisters, dark, 18 hours.
Respect.

Andrew Knowlman

I am a 50-year old father of two children, married to Jane. I live in Hertfordshire, UK. I was diagnosed with Amyotrophic Lateral Sclerosis in April 2015.

One thought to “Awareness”

  1. Thank-you, I thought this poem was really powerful. My copy of the little bakery arrived this week and I am very happy to have this book, even though I can’t actually read it (yet). Lots of love Helen XX

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