A day of rest

Before I did not believe it. Now I know that the day of rest is very important, a time in the week for reflection and reaffirmation of faith, if you have one. For me that is a couple of hours in church on a Sunday morning. I have missed it the last two weeks, and I felt the gap during the entire week. During the past months I have positioned my wheelchair in the back of the church, on the opposite side of the aisle to a lovely lady in a wheelchair. She was not there this week. People came to offer condolences to her husband. I remember her smiling face, singing voice and a warm greeting. Of course we do not go on for ever in this world. One day somebody is there, the next they are not.  

 Some people ask me to write a blog about the challenges of day-to-day life. It’s in my draft folder, but maybe it’s enough for you to know that it is incredibly tough. Jane wrote a comment to my recent blog ‘Is it painful?’, which gives her perspective on being in the middle of this.

I am refining a plan for a new project, something rewarding and enjoyable and also something which may contribute to my living 
as long as possible. People say it helps.

It is important to do fun things, amongst all of the various appointments I have. Probably the same for all of us, we all need to build in some time. Thanks to everybody’s generosity we have our marvellous VW van. We took it to Amsted Eef, or Hampstead Heath last week. Jane, Sebastian, Jampi and I (Valentina in Germany). 

 A day away from our routine. The day to have fun. It is still really possible. 

 Important to keep going whatever the weather. You may not know, but it rains sometimes in England.


 I love the dining table as being a place where people get together. Sharing a meal is just a great thing. We have my dad, our family, brother in law Damien from Australia, Jampi and Daniel, who cooked us all a lovely meal. Two Australians, two half Australian half British, two Hungarian and two British. I love diversity and spontaneity. 


Yes, the day-to-day life is constantly harder. We have great friends who help, from near and far, people who are making an amazing difference. It is simply impossible to do this on your own, by that I mean the support of the divine and the support of those I can see and hear. Clearly, regular consumption of our national dish is also important. 


Author: Andrew Knowlman

I am a 50-year old father of two children, married to Jane. I live in Hertfordshire, UK. I was diagnosed with Amyotrophic Lateral Sclerosis in April 2015.

One thought on “A day of rest”

  1. One of the most rewarding weekends I’ve had in a long time. Thank you andrew, Jane, Valentina and Seb for having me!

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