Perspective on life from somebody living with ALS / MND
It is with huge sadness that this post is written to inform the many followers of this blog that Andrew died this morning.
Please remember Jane, Valentina and Sebastian in your prayers (his wife and children), as well as Brian and Pat (his parents).
It seems fitting to close with Andrew’s words, from his very first blog post, written in June 2015:
… Click here to read on...My thought for today, and the reason for the name of the blog, is that we all should slow down a little.
Hello everyone,
It’s September 13th, 8pm. I feel that this will be my last post. I have nothing left.
This will appear automatically on September 27th, whether I am alive or not. When you feel like your life is over, the small and even big things are irrelevant. In the end, it’s about loving your fellow people and my Creator.… Click here to read on...
Feeling I would not see Jane, Valentina and Sebastian again in this earthly existence, I wailed, yes that is the right word. Days feeling bad. Immovable phlegm too far for suction, nausea, the loss, sitting in a recent bowel movement, not eating, poor sleep, discomfort, the future. Jane holds me and rubs my heart.… Click here to read on...
Hello everyone,
It’s September 13th. I feel that this will be my last post. I have nothing left.
This will appear on September 27th, whether I am alive or not.
I never thought I’d get married, and have a family.
Jane, I love you so much, I am so grateful. You still have the same beauty.… Click here to read on...
Sebastian took the bus to his new school for the first time on September 10th, 2018. Jane drove him to the bus stop, near the care home, and he shouted “Hello Daddy”, as they passed the open window of room 23 at about 0745. Jane found two older pupils of the school at the stop and they kindly agreed to be with Sebastian to and from school.… Click here to read on...
The government today outlined its evidence related to the men accused of poisoning of Sergei and Yulia Skripel in Salisbury in March. The following maps show their movements while in the UK.
The Yorkshire Post can exclusively reveal that the information released by the Metropolitan Police, Wiltshire Constabulary and the airports is false and that months went into developing a story to fool governments and news agencies around the world.… Click here to read on...
In 1975, Mika Vartonnen, a PhD student in Medicine, had an idea for a research project, which, little did he know then, could improve the quality of life of ALS / MND patients.
Vartonnen wrote to medical faculties worldwide, outlining his ambitious project, namely to determine if musical preferences between the ages of 14 and 21, would result in different health outcomes.… Click here to read on...
My mum’s life story, written by her, in the late 1990s and 2000s.
Do you recycle, drive a fuel efficient car, walk instead of drive, think about where the mango in your lunch comes from? Will you ever buy plastic straws again? Do you now pick up plastic on the beaches? If you do some or all of this, then you are prepared to change your behaviour for the sake of the environment.… Click here to read on...