4
I loved being an active dad
I wanted to give you much more
What am I to you?
What do you see?
How does it feel?
Right team
No choking
Voice quiet
Distressing
Normal conversation gone
I can Listen Without Prejudice
My life over?
In some ways yes
Walking running jumping swimming throwing catching hitting riding cooking holding a book ironing washing driving clarinet mowing it could fill pages
Sitting paralysed why me?
Hang on can’t be me
Normal lives
You can still give so much
I know
I wanted to be there
To walk to help them
Hug sitting on the bed running on the beach walk around a golf course
Gone and so vital
How long?
Don’t know
Choking scares them
My daddy
Hopeless
I should support
Now I need it
Absurd
People, fill the gaps
Take it further
Give the children what I can’t
In a care home
What?
Grateful nice people good care
The Turkish – Likya – we met twenty years ago
Legs feet arms hands voice
We need them
Father I trust you
You are pushing the limits
Cambridge eye gaze people
Thanks
Die Kleine Backstube
Our week in week out supporters
Sarah, a special thank you
You have seen my changes
Caron and the Welsh guy
York people
Community
Visitors from near and far
How is your dad Seb?
He looked away, wordless
A 14 year old girl
I’m the dad so terribly sorry
Jane thank you
Bucket list
Yep it’s family
Bucket word
Vision of a daily life
Not bad now
We’ll get there
Family community fulfilment
Knowing my needs
Before I do
Triggers bring the emotions on
Writing in the evening
I feel normal
Get in the flow
I hope I’ll be an Outlier
Averages need them
Colder now
Breathing sleep upright
Air feels stuffy
Talking about myself
Not what parents do
I look at them
In their eyes
I watch them move
Try and parent
Tired now
Four hours eye gaze
Story edited
This written
Much to do
Much to learn
It’s for a reason
But, make no mistake, it’s sad
Thank you for helping my family and I.
Andrew Knowlman
Forest Care Village
Borehamwood
October 6th, 2016
You are loved, my brother. Cling to faith and hope.
A beautiful poem Andrew. Think about you often over here.
We shall give her a really good party, Andrew. You don’t stop helping when your body stops. Love from Isaac and Abi x
Dear Andrew I just want you to know that I found this post absolutely beautifulSending you lots of love HelenXXXX
De : stopforamomentpeople À : landauciq@yahoo.com Envoyé le : Vendredi 7 octobre 2016 17h32 Objet : [New post] One evening’s words #yiv3997639449 a:hover {color:red;}#yiv3997639449 a {text-decoration:none;color:#0088cc;}#yiv3997639449 a.yiv3997639449primaryactionlink:link, #yiv3997639449 a.yiv3997639449primaryactionlink:visited {background-color:#2585B2;color:#fff;}#yiv3997639449 a.yiv3997639449primaryactionlink:hover, #yiv3997639449 a.yiv3997639449primaryactionlink:active {background-color:#11729E;color:#fff;}#yiv3997639449 WordPress.com | Andrew Knowlman posted: “4I loved being an active dadI wanted to give you much moreWhat am I to you?What do you see?How does it feel?Right teamNo chokingVoice quietDistressingNormal conversation goneI can Listen Without PrejudiceMy life over?In some ways yesWalking” | |
Andrew, your words and your way of thinking and sharing is life changing for many of us and our children and our families – I am humbled to be able to read this. Your life is reaching into so many places.