Waiting. So much 

I’m sorry for the children. I cry about it. Great at home yesterday. Know they are sad too. Great to be together again with all of us.

Times when it’s too much. 

Grateful to people looking after me. 

People helping our family. Thanks 

I have my projects.

I need a lot of support I am sorry to say. I should be supporting my family. I enjoyed watching, listening and tasting yesterday.

Very hard for all of us because this is a challenge and so different from how it was going to be.

Tired of explaining to staff.

Typed with knuckle.

Author: Andrew Knowlman

I am a 50-year old father of two children, married to Jane. I live in Hertfordshire, UK. I was diagnosed with Amyotrophic Lateral Sclerosis in April 2015.

8 thoughts on “Patience ”

  1. So you were able to get home..good to hear about what’s going on from you. I like the condensed writing! we have moved into Autumn. Lovely but not hot! It was good to have Jane, Valentina and Sebastian here. Now there are my kids and boyfriend and surf board coming and going but just me today. I have been holding space for people and enjoying that a lot. and lots of dancing but mainly what is nice is just being me. On the front page of the St Andrews Citizen was an article about a teacher from Rowena and Elise’s school who was organising a fun run for MND research, apparently that is happening in St Andrews university. Rowena knows him and has been to his house as she was friendly with his son at one time. He has MND too.At the end of the article it says do you know anyone with MND, so maybe I’ll write to them about your family, what do you think?

  2. Projects are essential Andrew whatever they may be. Have you ever done a family tree?

    The kids could then use the names and draw faces they think might match and put the branches on.
    Just an idea.

    Lots of love

    Susan and Ollie xx

  3. Well done Andrew, you found a way to communicate with us. Who would of thought how important knuckles could be – other than a joint. Blessings to you all. Love Christine

  4. Dear Andrew, it’s good to hear from you. Your spirit and inspiration is stronger than ever. Loving the knuckle typing, genius! Sending love to you and your amazing family. Colette xxx

  5. Knuckle typing … A new conception…..great. Geoffrey’s children all grown up but still Dad …watching him struggle ….he aches for his wife , Kathleen, but she is strong and so many things to do to make sure the quality of his life is the best we can make it …..lovely very expensive chair ….the only thing it doesn’t do is make a cup of tea !!
    Keep strong Andrew . Always in my thoughts …….

  6. Andrew,just back from a few days pottering about up in Suffolk, to find your “Patience” thoughts.Great that you can get the knuckles to allow you to put these thoughts down.
    As you know Brian Brett and I did the MND Morecambe Bay walk and we finished up with £1500.00 in sponsors.
    See you soon.
    John H Thaxted

  7. Hi Andrew just a note to say thinking about you and your lovely family .Very difficult time for you all good you have support and your projects , your thoughts are valuable allowing us to have some understanding ,with love Jenny .ps hope you can see my British Heart Foundation fundraising “Marathon” it will have taken me nearly a month I try to do a mile a day using my rollater takes me about an hour .

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