Author: Andrew Knowlman
I am a 50-year old father of two children, married to Jane. I live in Hertfordshire, UK. I was diagnosed with Amyotrophic Lateral Sclerosis in April 2015. View all posts by Andrew Knowlman
The Physical Side – it is not so interesting to go on about this, but here is an update. Let’s – stand with hoist for five minutes and otherwise in wheelchair.I meant legs .Arms and hands – itch chin, steer wheelchair badly and put drink tube in mouth ..Voice understandable.
Maybe there could be an update in how it is for the others ie Jane Valentina and Sebastian. How they are FEELING and how their needs are bypassed or even forgotten in all of this and how they ARE JUDGED for not “behaving” and not even asked if such and such is OK.Their
voices need to be heard too.