I have been amazed by what has happened in the months since I was told I had als. One incredible change has been in the relationship with my mum. At 87 years old she did not expect to be told that her only child, now 48 years old, has this disease.
Since it has happened we have hugged, cried, laughed, and shared more than in many years before. Sometimes events provoke it to come on more strongly, such as today when I lost balance and fell in the bathroom at the house of my parents. Seeing your son lying on the floor and being manhandled up by a neighbour cannot be easy.
It feels like both our hearts have been crying out for the intimacy which has now come. How grateful we are for this time together, and to get to know each other like never before.
As I spend time at my parents’ house they help and learn. We get closer. Quite incredible. It will continue once I recover from this!