I don’t use this blog to update on my day to day life, but a few people have asked for an update. It is often very hard to accept that my legs, feet, arms and hands no longer respond as I want them to. It takes at least 45 minutes to shower and get dressed, and I now need help with dressing. It is a big effort to turn my body in bed. I have noticed significant changes in my arm strength and fine motor strength and skills. I can still grip my walking sticks and tap the letters on the iPad. Writing, playing the clarinet are not possible and carrying plates and holding a tea cup is very difficult.
Last week we took delivery of a stairlift and an electric wheelchair. Their delivery only magnified the fact that life has changed. At the same time they have enabled me to go up and down the stairs without fear of falling (a killer in some cases) and enabled me to get around Kings Langley on my own. I am very grateful I live in a country where such equipment is available, at no cost.
The impact on the family is huge, and that’s something to keep private. Needless to say it is huge in many ways.
The wheelchair is a fine piece of German engineering and the video below shows it being driven by Sebastian, sitting on my lap. I spent £55 to give me £2million liability cover, in the event I cause mayhem on the High Street. A sensible use of money.
I have a lot of time when I accept things as they are. I also have (fewer) times where the situation upsets and annoys me greatly. There is something you will know called the Five Stages of Grief. I hereby inform the esteemed writers thereof that the stages come in any order multiple times per day.
If you in the area of Kings Langley or Hemel Hempstead, watch out Der Wagen is about.